Boy, 10, who looks 'scalded' has to carry cards explaining his rare condition to stop cruel taunts from strangers
Boy, 10, who looks ‘scalded’ has to carry cards explaining his rare condition to stop cruel taunts from strangers
In a bid to save their son's embarrassment, they now carry round printed cards with information about his syndrome to hand out to gawping strangers.Daniel, 41, a manager for Royal Mail, said: "Parents used to pull their kids away from him when we went out now we have to go to what we call 'safe' places where the staff know us."When we were on holiday a family were sitting having dinner. We were walking past and the whole family turned past and their jaws dropped.
His condition means that he finds it difficult to go outside during warm weather for extended periods and is often up all night scratching his painfully uncomfortable skin. After infancy, the severity of the skin abnormalities varies among people with Netherton syndrome and can fluctuate over time. The skin may continue to be red and scaly, especially during the first few years of life.
Dead skin cells are shed at an abnormal rate and often accumulate in the ear canals, which can affect hearing if not removed regularly.
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