Celine Dion steps out in New York City to attend her documentary screening 'I Am: Celine Dion'. The 'My Heart Will Go On' hitmaker made the appearance amid her struggle with Stiff Person Syndrome.
Celine Dion wiped away tears as she introduced her new documentary chronicling her battle with Stiff Person Syndrome, I Am: Celine Dion .
The Canadian singer, 56, was diagnosed with the rare autoimmune neurological disorder in 2022, but has since admitted she was grappling with the condition in secrecy for nearly two decades before going public that December. Addressing the camera, Dion admitted to being apprehensive about making the announcement while cancelling her Courage world tour in December 2022, because she was"not capable of being the best of me."'
During a preview for an upcoming sit-down with Today show host Hoda Kotb, she detailed the pain of having to hide the disorder from her supporters.Tears were visible as Celine told the audience: 'Thank you to all of you from the bottom of my heart, for being part of my journey'Dion's son approached his mother with the tissue as he stood nearby on stage
She recalled struggling while her husband, René Angélil, battled his own slew of health woes; he passed away from throat cancer in 2016. During a preview for an upcoming sit-down with Today show host Hoda Kotb, the hitmaker detailed the pain of having to hide the disorder from her supporters But she said 'lying' eventually became 'too much,' adding, 'Lying for me was... The burden was too much. Lying to the people who got me to where I am today, I could not do it anymore.'
She described keeping it from 'the people who got her to where she was' as a huge 'burden,' explaining that it felt like she had to 'hide' while secretly feeling like her 'body was leaving her''Her voice was gone, her body was failing her, she was tripping and falling, all these things were happening.'
There is no cure for SPS, but there are steps that can be taken to slow down symptoms - something Dion previously revealed she is exploring. Despite battling the disease for 17 years, Celine continued to perform up until 2022, when she canceled all upcoming shows. She's seen performing in 2015 'Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible,' she wrote.'I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it. We can do it.'
'I can’t answer that … Because for four years I’ve been saying to myself that I’m not going back, that I’m ready, that I’m not ready,' she explained.
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