Over the years, the charity has seen support from sports stars such as Sam Tomkins and Owen Farrell
A charity has helped transform the support available for families across the UK - thanks to backing from big stars and residents across Wigan.
With some of the biggest names in rugby union and rugby league acting as ambassadors to the organisation, Jack's mission to help more fighters like him will continue. Duchenne Muscular Dystrophy is one of the most common fatal genetic disorders to affect children around the world. According to the charity’s data, approximately one in every 3,500 boys worldwide is afflicted with Duchenne Muscular Dystrophy with 20,000 new cases reported each year.
“We set up a project called the DMD hub which has established a network for 11 clinical trial sites which are delivering trials to 500 boys - which do give families hope. Jack is on one of the 30 trials at Alder Hey Children’s Hospital that have just presented results of the study and it is showing it is slowing the progression of the disease.
“He knows a few boys with Duchenne that don’t have this access and that does upset him - he wants to help them to get it as well. Us raising awareness will hopefully lead to them getting access as well.” Despite being a leading figure in the charity alongside mum, Alex, and dad, Andy, he seems unfazed by the duty on the surface. However, he admitted it can be tough constantly going for treatment to maintain his health.
“It is amazing, every time Owen Farrell does the Joining Jack symbol for England it puts a smile on my face to think he’s thinking about other boys with Duchenne and me,” Jack continued. “It can be challenging to deal with going into hospital but it is important to keep my health good.
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