As a hearing takes place in Parliament to discuss the possible purchase of Vertex, a life-saving drug for cystic fibrosis sufferers, Rachael Young, whose 10-year-old son Ethan has the condition, argues it can't come soon enough.
“Cystic fibrosis isn’t just an illness” says 48-year-old Rachael Young, whose 10-year-old son Ethan lives with this debilitating genetic disorder. “It is a condition which eats into every aspect of family life. There is no cure, no escape. Even with medication, you still have a sick child. What I want, and hope for every day – and for my daughter Emily too – is for our lives to be just a little bit easier.
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