Enzo Brisen had started to 'suck in' to breath
A mum who watched her baby's life "fade in front of her eyes," told the ECHO how one Christmas Day their lives came crashing down.
She continued: "We were told everything was fine and thought nothing more of it. He was about six months old and I really started to notice something was wrong. He was sucking in to breathe, he wasn't breathing normally. I took him to GPs and A&E, I was told he had an allergic reaction to his jabs at 12 weeks.
Amy said: "We thought it was a cold, he was eating fine on his birthday just two days before. But then he was sleeping 16/18 hours a day and was so, so tired all the time, his breathing got worse; me and Lee hadn't noticed it but his chest had got larger because his heart started to swell. "We got the results back and it showed he had fluid on his lungs. Everything went downhill, we felt like our world was flipped upside down and shattered. We were told his heart was three times the size it should be.
Amy recalled how they were told to go straight to Alder Hey Children's Hospital, who were ready and waiting for the family to arrive. She said: "Christmas went out the window. It was around 12.15am on Boxing Day when we got settled into the room at Alder Hey, they had everyone waiting for us when we arrived, all the specialists. It felt overwhelming. They were prepared for everything we were about to throw at them.
Over the next few months Enzo's health declined rapidly, he lost weight, stopped eating, walking and talking, Amy recalled. It was around Easter when Enzo contracted a cold and ended up in a worrying condition. Eventually, after weeks of staying in hospital Enzo finally had a date for his operation. Amy said: "He had his operation in June 2023. I remember that day, we just sat there while he was in his operation like it was another day. I was trying to play sudoku, I started crying because I didn't know how to play.
"We went to see him and you could tell he was in pain, but he had colour in his face for the first time since he was a baby. He had pink cheeks, his face wasn't as puffy, he was breathing for himself, and we were sobbing again, laughing, crying, I remember just wanting to hold him.
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