Sally C. Pipes is president, CEO, and the Thomas W. Smith fellow in healthcare policy at the Pacific Research Institute. Her latest book is False Premise, False Promise: The Disastrous Reality of Medicare for All, (Encounter 2020). Follow her on Twitter @sallypipes.
approval of tofersen, a new drug that treats a rare genetic form of amyotrophic lateral sclerosis, or ALS. That decision came nearlyPatients with that rare form of ALS in England aren't so lucky. The National Institute for Health and Care Excellence, or NICE, which evaluates whether treatments are"cost-effective" for the country's National Health Service,It's a story that British patients are far too familiar with.
The Inflation Reduction Act, signed into law by President Biden in 2022, gives the federal government the power to set drug prices—andGet Up To 50 Off During The Hoka Memorial Day Sale ICER's stock in trade is the QALY, or"quality-adjusted life year." A QALY attempts to put a price on one year of healthy human life. A year of"perfect" health gets a higher value than a year of added life that includes living with an illness or other infirmity.
Treatments for older people and those living with a chronic illness or disability thus yield lower QALY scores than treatments for younger and healthier patients. It's discrimination based on health status of the most blatant sort.to perform cost-effectiveness studies with Britain's NICE, along with a sister organization based in Canada.
We know how this story ends. Tofersen isn't the first promising drug that NICE has put the kibosh on. In 2022, NICE decided that a cutting-edgeBritish health authorities have perfected the art of manufacturing research to justify denying innovative treatments to patients, on the grounds that they're not cost-effective. President Biden and his allies in Congress seem hellbent on going down this same path.
QALY NHS ICER UK Health Care Drug Rationing Drug Approvals Drug Access Health Care CMS
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