Epidermolysis Bullosa, 'EB' for short, causes fragile and blistering skin.
SEATTLE — Dozens of people gathered at Alki Beach Sunday morning to"Plunge for Patterson," with the goal of raising awareness and money for a rare, genetic condition."It makes me feel happy to see people supporting EB," said Patterson McKenzie, who was born with EB."You can get scraps anywhere at any time and we really want a cure for it."
In his short life, McKenzie has benefited from the support of Jill and Eddie Vedder, a well-known West Seattle couple that co-founded the"It's a topical gene therapy that when Patterson gets a blister or open wound, they put it on at night and 24 hours later, that wound is healed," Jill Vedder said."It's not a cure but it's such a huge massive achievement that just never existed before.
Jill Vedder said seeing the community come together gives her hope that one day, soon, a cure for EB will become a reality. "Doing plunges like this, bringing the community together, and getting people aware of EB really helps move our mission and get us that much closer to a cure," Jill Vedder said.KING would like to send you push notifications about the latest news and weather.
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