The EESC high-level conference held in Budapest urged the new European Commission and the EU Member States to develop a comprehensive policy framework, setting common and measurable objectives to address the rare disease pathway and further increase European cooperation.
European Economic and Social Committee Dec 2 2024
Following on from the previous EESC conferences on the subject, held in Bilbao in 2023 and in Brussels earlier this year, the EESC is pressing the EU and its Member States to support and enhance the implementation and monitoring of national plans on rare diseases.
The EESC has worked with civil society and patient organizations to ensure strong European solidarity for patients with rare diseases and their families in order to advance a common rare-disease policy with measurable objectives at EU level. It is essential to integrate healthcare and social services for rare disease patients and to recognize their disability, so that they can receive adequate support that allows them to live independently.
High-level speakers The conference, whose detailed conclusions will be presented at the EPSCO Council in December 2024, saw the participation of leading experts.
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