Mum Jayne Hughes is raising awareness about her daughter's illness to help others
A mum knew her daughter was different despite doctors saying otherwise. Jayne Hughes’ daughter Amy was born prematurely at 28 weeks in 1991. As she was growing up, doctors gave this as a reason why Amy was different from other children but Jayne was sceptical. Speaking to the ECHO, Jayne, 58, who is originally from New Brighton but now lives in North Wales , said: “She was tiny. We'd never seen such a tiny baby. She came out of the hospital really quickly.
' However, Jayne is keen to stress Amy still had an amazing life and made so many memories, including working closely with her mum to raise awareness about her condition after she set up the Amy and Friends charity in 2007. The average life expectancy of someone with Cockayne syndrome is normally eight years and four months but Amy lived until she was 28. She died on New Year’s Day in 2020.
New Brighton Health And Fitness
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