A one-year-old girl named Celine will travel to Mexico for potentially life-changing stem cell therapy after her family raised £86,000 to fund the treatment. Celine has myotonic dystrophy, a rare genetic condition that causes progressive muscle weakening. The therapy is not available on the NHS, so her parents launched a crowdfunding campaign.
A one-year-old girl will fly to Mexico to receive potentially life-changing stem cell therapy after her family raised thousands of pounds to fund the treatment. Celine, whose birthday was in December, was diagnosed with myotonic dystrophy , a rare genetic condition , a month after she was for muscular dystrophy and has not been approved on the NHS. So Celine's parents, Lottie and Charlie, have instead raised £86,000 to fund the treatment overseas after launching a crowdfunding campaign in July.
The family, from Colchester, Essex, will travel to Mexico later this month for the first round of stem cell therapy, which Lottie said Celine would need to receive every year. They hope it will slow the weakening of her muscles.The 36-year-old said she had not expected to celebrate her daughter's first birthday and was worried she would be too unwell to be at home for Christmas.'She didn't have a clue what was going on but we did and it meant the world.' Lottie said she was anxious about the trip to Mexico but excited to see whether the treatment would improve her daughter's condition. 'We've worked so hard towards this; everyone has. We're so grateful for the chance, but now it's very real.', took part in a 100km (62 mile) walk from Colchester Town Hall to central London to kickstart the fundraising campaign. More events were planned for 2025 to help cover the cost of a second round of treatment for Celine, her mum added.Myotonic dystrophy is a genetic condition which leads to progressive muscle weakening.Celine's parents have been told their daughter will never have a normally functioning immune system
Stem Cell Therapy Myotonic Dystrophy Rare Genetic Condition Crowdfunding Mexico
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