Many families don't realise there is help out there.
Every aspect of Phoenix’s care was taken care of by staff One of Sarah Sea’s favourite memories is from a Spanish holiday she went on with her two sons. Getting up early one morning, the family carefully made their way to the beach to watch the sunrise over the ocean. ‘Phoenix loved being by the sea,’ Sarah remembers. ‘It was his happiest place to be.’ Her youngest son, Phoenix, had been diagnosed with Infantile Neuroaxonal Dystrophy when he was just 18 months old.
By this point, two-year-old Phoenix needed around the clock care, was on oxygen at all times and unable to move at all. Just getting to the airport was a feat in itself, but three concierges met the family to help carry all of Phoenix’s equipment. They arrived at their apartment, greeted by a path that had been adapted especially for her son’s needs. ‘They wanted us to be able to go and watch the sunset and their path wasn’t wide enough,’ she remembers.
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