His fingers started turning as white as paper
A 47-year-old dad who takes takes 250 tablets a week and relies on oxygen due to a rare health condition has surpassed his life expectancy and believes he still has "plenty left" to give.
In March 2018, Scott underwent monthly chemotherapy treatments for a year, now reduced to once every six months, to help soften the skin and tissue around his internal organs. However, he now struggles with lung function issues and pain due to the muscle-wasting nature of the condition. Approximately 19,000 people in the UK live with the condition which can stop parts of the body from functioning properly and, in severe cases, cause physical disability and be life-threatening. It is also common to have another condition called Raynaud’s alongside scleroderma, which causes the small blood vessels in the extremities such as the hands, feet, fingers or toes to be over-sensitive to changes in temperature, cold conditions and emotional stress.
This alarming symptom led Scott to book an appointment with his GP, where they conducted stool and blood tests. The blood test revealed a marker known as SCL70, an antibody found in approximately 20 percent of scleroderma patients, as per NHS information. Struggling to breathe, he tried sleeping upright until it became unbearable. Morphine provided some relief for his breathing.
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