Naima Chakkour is one of the world’s longest survivors of Motor Neurone Disease (MND, also known as ALS) and shares her story with Metro.
Naima, pictured here at the Hotel Le Mirage in Morocco , has defied all the odds to live with MND for decades When Naima Chakkour found out she had a terminal illness, she initially didn’t tell a soul. The mum-of-four carried on as normal despite the ‘smell of death’ she felt followed her. Naima had been diagnosed with Motor Neurone Disease , an incurable illness which had begun to attack her nerves. Her muscles were destined to deteriorate until they reached a state of paralysis.
As she now struggles to speak for long periods or use her hands, Naima wrote all 30,000 words of Undeterred using a device fitted to her neck which plugged into her laptop. The book explores key chapters in her life; such as her upbringing in Morocco, her journey to forgive her ex-husband and a near death experience in 2012. Naima adds: ‘I don’t want people to feel sorry for me, this is about empowering people.
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