A Utah educator teamed up with two of her sisters — one a doctor, the other a patients' advocate whose son survived a lymphoma diagnosis — and an illustrator friend to start Hello Brave, a children's health literacy program that aims to publish books to help kids cope with the medical situations they face.
A Utah educator, two of her sisters and a family friend form Hello Brave, to improve health literacy among kids.
“As we were brainstorming, it was like, ‘If somebody handed me a children’s book about lymphoma, right after Elliott was diagnosed, I really think it would have helped so much and it would have helped the trauma that came after that we’re still dealing with,’” Beach said.was born, with a goal of helping improve health literacy for children and their families going through medical situations.
The hospital, Beach said, did have some resources, such as a psychologist and child life specialist. However, she said, those people were “very busy” and “we didn’t see them very often, so we really were navigating the majority of it on our own.”“How do I talk and get through to him? How do I know how much information to give? All these things weighed really heavily on me,” she said. “I didn’t have any tools of how to talk to him about it, and it was just so challenging.
“He struggled a lot mentally, and getting back to school and all the friendships changing,” she said. “They’re in second grade, and they didn’t know how to deal with it. He comes back and he’s like, ‘Shouldn’t I be the most special person ever?’ And they’re like, ‘No, you’re just a kid.’” The book is dedicated to Elliott, “whose extraordinary bravery inspires and motivates many.” Elliott, now 10, was involved in the project, his mom said, giving suggestions.
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