It has been over two years since Long Covid stole my career as a pediatrician. Millions of other Americans with Long Covid are waiting for research on effective treatments.
We need more and continued research into effective treatments for Long Covid.Today is International Long Covid Awareness Day, and the millions of people struggling with life-altering symptoms of Long Covid need us to pay. Many have been sick and disabled for almost four years now. For me, it’s been over two years since Long Covid stole the pediatricI left work on January 13, 2022, completely unaware that it would be my last day seeing patients as a pediatrician.
Cooking dinner for the family is now an aspiration that I only occasionally realize. Sometimes, I can have a conversation, sometimes I can’t follow what others are saying or find the words to respond. I can no longer count on my body to be able to do basic things like standing up without a near-fainting episode, or the world spinning from vertigo.When most people think of Long Covid, they think of fatigue.
As both a physician and a patient, the frustration of not being able to work is overwhelming. I intimately understand the needs of Long Covid patients and the variability of treatments available, yet I find myself facing disbelief from doctors who are unfamiliar with the condition. To be unable to get out there and help other patients who need a doctor that understands Long Covid is infuriating.
While there has certainly been research on Long Covid, most of it has focused on defining the condition rather than on treatments. Patients have expressedwith the way the NIH allocated the $1.15 billion Congress provided to help patients in December 2020. The vast majority of those funds went towards observational studies, not clinical trials to find treatments.
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