Her daughter has endured five open heart surgeries – one of which led to a stroke
A mum from Nottingham is running this year's London Marathon for her daughter who has endured five open heart surgeries – one of which led to a stroke when she was just four-years-old. Jen Evans, 37, is raising money for the British Heart Foundation after her daughter Sophie – now aged 13 - was born with a congenital heart condition called hypoplastic left heart syndrome.
Unfortunately, they were unsuccessful and over the next few days Sophie's condition started to deteriorate. At just nine-days-old, specialists determined that she should begin the first step of the Fontan process to try and build her a new, larger aorta. Jen said: "Sophie was due to have the final stage of Fontan surgery when she was four. But she started getting out of breath and her lips and hands kept turning blue as not enough oxygen was flowing around her body. So, doctors decided to go ahead with the procedure earlier than planned."
They discovered she had a leak in her aortic valve which meant she required further surgery. "She has been pretty stable since her operation to fix the leak but may need more surgery in the future to replace her aortic valve," added Jen.
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