Nellie seemed healthy and was developing as she should until mum Megan started to notice something was wrong
A "healthy" toddler was diagnosed with a rare brain disorder after she developed a squint - and may only live another two years. Nellie Gillett, three, had been developing at an expected pace before mum, Megan, 35, noticed her symptoms.
Megan, a personal banker, said: “In just months, Nellie went from being an able child - albeit not walking - to not being able to do anything at all. It was heartbreaking. I don’t want people to think a diagnosis is always the end. MLD is a rare brain condition, which affects just one in 40,000 people in the UK. The symptoms include loss of intellectual, thinking, memory and motor skills. The prognosis is usually five years after diagnosis.
Megan added: “We stopped working and had an amazing summer doing everything we wanted - Peppa Pig parties, festivals, static caravan holidays, constant days out. We don’t want to be sad. When she’s gone - that’s when we can be sad. She’s still here and can smile.
United Kingdom Latest News, United Kingdom Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Everton player ratings as Megan Finnigan and three others great vs LiverpoolEverton player ratings after Blues get their first win of the WSL season by beating Liverpool 1-0 at Anfield
Read more »
Everton captain lifts lid on key Anfield decision behind Merseyside derby winMegan Finnigan scored the winner for Everton against Liverpool in the Merseyside derby at Anfield
Read more »
Prince Harry and Meghan 'jealous' over William and Kate's new venturePrince Harry and Megan Markle 'jealous' of Prince William and Kate Middleton after the Royal couple attempt to 'crack America' following trademark application
Read more »
Nottingham Forest man Dale Taylor denied perfect start as milestone reachedLatest Nottingham Forest news as academy graduate makes first start for Northern Ireland in the 3-0 win against San Marino
Read more »