Two Nottingham mums have spoken out about the heartbreaking loss of their sons
. Amanda Sotos-Castello and her step-daughter Imogen Sotos-Castello are raising money for Rainbows Hospice after caring for their sons who sadly passed away.
“Notwithstanding his significant disabilities he was a big presence, he was always smiling and laughing and had a great sense of humour. Luke changed my life; my experience with him made me re-evaluate what is important in life and I learnt to find joy in living in the moment and appreciating and being grateful for the smallest of things.
“Our beautiful son Otis, however, beat all of the odds, and continued to amaze everybody involved in his care. He overcame many challenges in his short life, including major surgery, recovering from a heart attack, and suffering bleeds on his brain and lungs. He spent his entire life on a ventilator, and much of his life sedated, but never once gave up his fighting spirit. He strived to be the very best he could for himself and everybody else, and we will love him forever for it.
Imogen and Steven have raised more than £12,000 for Rainbows, last year the pair took part in the Peak District Walk with their son, Otto, 2, who was carried on Steven’s back.
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