It’s been hard to see Ben grow up, without Jack. Last week would have been his 18th birthday, and as I watched Ben open his presents, I couldn’t help but think I should have been seeing it twice.' ✍️ Suzann Halil writes for MetroOpinion
My favourite picture of my twin boys, Ben and Jack, is on the fridge.
When Ben came home, fully recovered, we managed to share our first – and Jack’s only – Christmas together as a family. At first, he was really sleepy, and had a temperature. Doctors gave him antibiotics, and I was advised to give him Calpol – but it wasn’t shifting. I was a first-time mum, but I just knew something wasn’t right.
I would pray every day for someone to save him. I’d say, ‘Four corners to his bed,, four angels round his head; one to watch, one to pray, and two to keep all harm away.’ After some research, I contacted a Kawasaki disease specialist online, in America – saying that Jack’s hospital was storing parts of his heart tissue, and how I’d like them to go to good use. Thankfully, they liaised with each other, and Jack’s heart was shipped over toOver the years, we’ve stayed in touch – and I’ve been sent countless studies where Jack’s organs and tissue have helped uncover ground-breaking discoveries for research into the disease.
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