Imagine gradually losing the ability to express yourself -; not because you've forgotten the words, but because they simply won't come out.
University of Chicago Medical CenterNov 26 2024 Imagine gradually losing the ability to express yourself -; not because you've forgotten the words, but because they simply won't come out. This is the reality for individuals living with primary progressive aphasia , a rare form of dementia that usually begins in middle age and increasingly impairs language abilities over time.
"PPA is a relatively rare dementia," said Emily Rogalski, PhD, the Rosalind Franklin PhD Professor of Neurology at UChicago and a leading researcher in the field. "It's often overlooked in the literature because it can be difficult to assemble large groups of people to survey lived experiences." "These individuals are at a different life stage from late-onset Alzheimer's dementia patients," Rogalski said. "They're often still in the prime of their working career; they may have young children in the home."
Unsurprisingly to those familiar with the disease, the results showed that PPA has a moderate to severe negative impact on patients' health-related quality of life. The results also showed that greater language impairment in individuals with PPA was linked to a lower quality of life, particularly affecting domains such as hearing, sensation, cognition and speech.
"When it comes to policy-making and government allocation of resources, it really is important to have these broadly applicable measures so better decisions can be made," Hopkins said.
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