. Sia just got real about the emotional impact of living with chronic pain
Sharing a picture of her feet, Jamil wrote: “An EDS thread. EDS is having to lie with your legs above your head every evening because of the pain and swelling from being on your feet. What is your EDS experience?”
In response to the tweet, many of Jamil’s followers began sharing their experiences with the condition, which affects approximately 1 in 5000 people worldwide, People living with EDS often describe themselves as “zebras” due to the rare nature of their condition. The nickname refers to a phrase which is commonly taught to medical students during their training, “When you hear the sounds of hooves, think horses, not zebras,” which prompts them to assume common conditions before they jump to a rare diagnosis.EDS diagnoses are a group of “rare inherited conditions that affect connective tissue”. There are several forms of the syndrome, including Hypermobile EDS, Classical EDS and Vascular EDS.
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