A new study shows that patients can experience reduced co-determination and insufficient information about their cancer treatment, while doctors face pressure to give treatment they do not consider useful.
"Continuity in the patient-health care personnel relationship and familiarity with each other were emphasized as absolutely fundamental when trying to make the best possible decisions," says associate professor at the University of Bergen and senior author of the article, Margrethe Aase Schaufel.
"The doctors expressed a need for tools that provide more reliable knowledge about treatment tolerance and effect for the individual patient," says Schaufel.The study concludes that it is difficult to develop a so-called decision aid for advanced lung cancer that will be able to solve the challenges and needs reported by stakeholders, especially when there is great uncertainty related to the effect of several lines of treatment in advanced disease.
"Measures are called for that can ensure continuity in the patient-health care professional relationship and enough time for dialog, communication training for clinicians to increase the patient autonomy, and better scoring tools for treatment tolerance," Schaufel concludes.
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