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On June 3, 2024, TBpeople Philippines representatives commenced on a notable journey to Durban, South Africa to participate in the Community Engagement Forum facilitated by TB Alliance. This forum, held at the Garden Court Marine Parade Hotel in Durban, South Africa aimed to connect and share strategies among global community engagement leaders. Representing TBpeople Philippines were Mr. Allen Joshua Tortosa, Community Engagement Leader; Ms. Kristina Tay, Admin for Community Engagement; and Mr.
Another significant topic discussed was the inclusion of tuberculosis in research and development R&D, the introduction to GEDSI and social behavioral research underscored the necessity of inclusive approaches in TB care and treatment in clinical trial. On June 4, 2024, Day 2 of the CE forum opened with an eagerly awaited update on the NC-009 clinical trial, discussed by the TB Alliance. This session set a collaborative and informative tone, laying the groundwork for a day rich with presentations and discussions geared toward clinical trial.
Mr. Joegene Mangilaya then shared his personal experience as a participant in the clinical trial for the BPAL regimen. His testimony provided a humanizing perspective on the clinical trial process, highlighting both the challenges and the hope it brings to TB patients. Mr. Mangilaya’s story served as a powerful reminder of the real-world impact of clinical research and the importance of patient involvement in these studies.
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