For years, these women say they've been dismissed and shamed for a painful disease they have little control over. Today, they're using their new-found knowledge to deliver a powerful message.
You might spend most of your life being told you're too fat, too dimply, too chunky.As the condition progresses, your pain increases and pressure to the skin becomes excruciating.
Swelling and bruising happens often and easily. Your mobility worsens to the point where you may need a wheelchair. While its true prevalence is unknown, international studies estimate around 11 per cent of women and those assigned female at birth are affected.Xanthia Efthymiou is a vibrant 22-year-old. She exudes confidence.
However, as a teen with thicker thighs, Xanthia was well aware her body didn't fit the aesthetic of her generation."I felt really ashamed of my body.""If you were to put 10kg of ankle weights on my legs, that's how it would feel to walk," she explains.One of the world's leading researchers on lipoedema says this advice is not only harmful, it's just plain wrong.
That's why Dr Karnezis — and her research team at St Vincent's Hospital in Melbourne — are working towards an earlier diagnosis.She's clocked up almost two million followers.Watch
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