Ryleigh Hillcoat-Bee had a cardiac arrest and died on Monday, November 8, 2021. But an inquest ruled her condition could have been investigated more three months before her death in August.
Ryleigh Hillcoat-Bee had a cardiac arrest and died on Monday, November 8, 2021. Her parents are furious with Blackpool Teaching Hospitals NHS Trust for its careA three-year-old girl died three months after doctors 'missed opportunities' to diagnose her rare condition and instead sent her home from A&E.
However no follow-up was organised, and three months later Ryleigh was back in A&E after her parents Caroline and Andrew became concerned about her breathing. After arriving at Blackpool Victoria Hospital Ryleigh's condition rapidly deteriorated. She suffered a cardiac arrest and died on Monday, November 8, 2021.
Common signs and symptoms of rhabdomyolysis are weak muscles, muscle stiffness, muscle pain and a change in your pee color.Advertisement Her parents were then left 'infuriated' after the hospital phoned to arrange the follow-up tests a few days after her death.
Three months after being discharged, Ryleigh spent Saturday November 6 watching Blackpool Illuminations and the day after visiting a soft play centre. The three year old eventually settled and went back to sleep but in the early hours of the next morning her mother woke to Ryleigh crying. It was only months later, after multiple tests were carried out by experts at Alder Hey, Sheffield and Newcastle hospitals, a repeat whole genome sequencing revealed she had a Lipin 1 deficiency.
Representing Ryleigh's parents Diane Rostron, medical negligence solicitor, said: 'The hospital was given clear advice from colleagues in Leeds during Ryleigh's admission in August 2021 to seek specialist advice from a neuromuscular specialist. 'We believe that Ryleigh's death could have been prevented and have been instructed to pursue a medical negligence claim.'
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