Beandri Booysen, a beloved TikTok star known for her positive spirit and advocacy for rare diseases, tragically passed away at the age of 19 after battling Hutchinson-Gilford progeria syndrome.
TIKTOK star Beandri Booysen has tragically died at the age of 19 after battling a super-aging disease.Just two months ago, the teenager underwent an open-heart surgery - and was determined to enjoy Christmas with her parents. She was born with the rare disease called Hutchinson-Gilford progeria syndrome which causes fast ageing in children and also suffered from osteoporosis which makes bones brittle and break.
Only one in 4 million babies are born with the incurable defect and Beandri was just one of 200 known sufferers in the world. Beandri’s mum Bea confirmed that she had lost her battle for life yesterday and thanked all her fans worldwide for “loving her deeply”. She said: “It is with deep sadness that we announce the passing of Beandri one of South Africa’s most beloved and inspiring young women who always radiated hope and joy. “Beandri was known for her vibrant personality and infectious laugh and as the last surviving individual in South Africa living with the rare genetic condition Progeria. “She became a symbol of awareness for Progeria and other special needs children using her unique spirit to inspire thousands worldwide. She never stopped fighting”. With an incredible 269,200 followers on TikTok, Beandri said she wanted to raise more awareness about the rare disease and inspire other people going through tough times.Watch as drunken passengers brawl on Jet2 flight & try to bite each other She said in an interview earlier this year: “I’ve been living with Progeria since birth and I am used to it and I’ve learned over the years to deal with all the challenges and surgery. “I face everything that God brings into my life and I credit my family for my strength and support by raising me as a “normal” child and not one to be seen as different to others. “This made me stronger and the person I am today. I have a large TikTok presence to try and inspire and motivate those who follow me and keep them positive every single da
PROGERIA Rare Disease Tiktok Star Beandri Booysen Death
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