To celebrate Disability Pride Month, NPR readers tell their disability stories and share what they wish other people knew about living with a disability.
Courtesy of Laura Williams, Hannah Soyer, Denise DiNoto, Marty Slighte, Kristen Bettega, Rami Ungar, Mike Fitzsimmons, Sara Burback, Kathy Hyde and Rebekah Taussig.
To celebrate this month, we asked readers and listeners to share their experiences with disability. We wanted to know: What's one thing you wish people knew about living with a disability? The nearly 300 responses from NPR readers represent a wide breadth of disabled experiences. Though no one person's story is universal, these were some of the lessons about living with a disability that stood out most.Hannah Soyer has spinal muscular atrophy, a form of muscular dystrophy and a form of paralysis.Become a KPBS sponsor
Denise DiNoto has had a degenerative neuromuscular disease her whole life. The 50-year-old wants people to know that"disability is not a fate worse than death. She points out that"you can adapt, and you would if you suddenly became disabled." "Some people have disabilities that come and go," Kristen Bettega said. No one questions that major physical diseases like cancer develop and then go into remission. I wish more people knew that other disabilities are the same. If I need intermittent time off for depression but can work most days, that doesn't mean I am faking depression.Rami Ungar has autism, ADHD, anxiety and albinism.
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