Woman's brain is slipping down her spine

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Woman's brain is slipping down her spine
United Kingdom Latest News,United Kingdom Headlines
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The 25-year-old faces permanent disability if she cannot raise the £200,000 she needs

A 25-year-old who has been mostly bed bound by a painful condition that is causing her brain to slip down her spine is pleading for help to raise funds for lifesaving treatment in the US to stabilise her skeleton.

Emily also has Chiari malformation, which means the lower part of her brain has herniated and is pushing down through the top of her spinal column. “My health is continuing to deteriorate but I still haven’t managed to raise enough money to get the treatment I need in America,” Emily said. Due to Chiari malformation, Emily’s brain is pushing down through the top of her spinal column and she said medical specialists have informed her that some of her brain is no longer in her skull. Emily once had dreams of working in film, but she is unable to complete her degree and is also not able to work while she struggles with her health.

“It turned out I was struggling with blood flow to the arm, and I’ve regained limited use of my arm, but I’m high risk of it happening again. I’ve seen people with these conditions lose function of their arms completely and that obviously concerns me because I live by myself.Emily said her brainstem has been damaged to the point where her body is not functioning and she suffers daily from extreme fatigue, periods of paralysis, and loss of vision.

Emily said: “It’s incredibly frustrating and I have to accept that I can’t live the life I thought I would. I’m seeing other people my age having fun and building their careers but until I get the PICL procedure, I’m stuck. There are other people who are also in my situation and it’s not an easy journey but I just hope that these treatments will be easier to access closer to home so we can get back to living.

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