'I don't look well when I'm in my house, in the same pyjamas for three days, unshowered and half asleep'
She is one of over 250,000 people in the UK living with the condition, which is caused by a dysfunction of the neurological, immune and endocrine systems as well as the metabolism.
‘The fear of judgement stops me using disabled facilities as much as I should. It’s something I’m aiming to do more of, because I know I’m entitled to do so. Although doctors were able to operate to place them inside her body, it meant she had short bowel syndrome, which means the body struggles to absorb food.
‘However that initial relief quickly turned into frustration when I realised the severe lack of funding and understanding for the condition. I thought I would get help after a diagnosis.Just getting ready to leave the house can leave Jenny exhausted Orthostatic intolerance – the inability to correctly regulate blood pressure, cerebral blood flow and consciousness when upright
‘To be honest my day to day life is normally difficult from the moment I wake up until the moment I go to sleep.‘I’ve gone weeks in the past without stepping over my front door. It varies all the time.
United Kingdom Latest News, United Kingdom Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
You Don't Look Sick: 'People think I'm lying when I say I'm ill''I tap my disabled bus pass and when I do I sometimes feel like people are judging me because I don’t look ill.'
Read more »
Boy, 7, has never spoken and could die if he's sick but doctors don't know whyTina Lowe's little boy Oliver is the 'one of the happiest children alive', and is always extremely brave even though he suffers from a huge collection of medical problems
Read more »
Trust Me season 2 spoilers: ‘Feel a bit sick’ Star reveals unease over THIS sceneInjured soldier Jamie McCain arrives in hospital after falling from a building in BBC's 'Trust Me.' Jamie overhears people discussing the death of a patient.
Read more »
People assume I'm middle class – don't they know I grew up playing darts?Not many writers come of age in pubs, standing at the oche. But, as memoirist Cathy Rentzenbrink writes, you can learn a lot from boozers and bullseyes
Read more »
The best thing about this Easter Joke are these six people who don't get itWhether you’re on the side that believes Political Correctness should be enforced fervently and at all costs, or whether you believe that it’s all getting a bit out of hand, there’s nothing quite
Read more »
If ministers really want to trust teachers it’s time to ditch the number fairies | Michael RosenRather than relying on data and measurement, the UK government should listen to teachers, parents and pupils, says writer and broadcaster Michael Rosen
Read more »
People avoid feeling empathy because it's mentally taxingResearchers said shifting people's motivations towards empathy 'could be good news for society as a whole'
Read more »
Supreme Court to decide if it's legal to fire people for being gayA series of cases the Supreme Court is reviewing could set a controversial precedent for US employers
Read more »
Opinion: Fellow dog owners, it's time to accept that people aren't obligated to love our petsLoving dogs is as British as cracking a joke. But not everyone is a dog lover – and that’s OK
Read more »
Key detail missing from Prince Louis's birthday photos - and it's a real shameKate Middleton and Prince William shared three adorable photos of their youngest child Prince Louis to celebrate the royal tot's first birthday
Read more »