Robyn needs a bone marrow transplant to survive, but the complexity of her condition means that the procedure isn't available in Ireland or Northern Ireland
The family of a baby girl who was diagnosed with a rare and life-threatening genetic disorder have launched a fundraising drive to help with vital care.
"Although a medication introduced after her first birthday has helped her to produce more platelets, this treatment is not a permanent solution. Eventually, it will cease to be effective, making a bone marrow transplant essential to save her life. "The projected timescale for her operation, treatment, and recovery is 6 to 12 months, or possibly longer if any complications arise," Pamela added.
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