Garret Frey refuses to be sidelined. Frey has been paralyzed from the neck down for more than 37 of his 42 years. He has spent decades rejecting the government's excuses when he and others with disabilities are denied the support they need to live in their own homes and to participate in society.
Frey has been paralyzed from the neck down for more than 37 of his 42 years. He has spent decades rejecting the government's excuses when he and others with disabilities are denied the support they need to live in their own homes and to participate in society.
He has served on numerous local, state, and national boards and committees focused on protecting disability rights. He composes emails and updates his website using voice commands and a sticker on his chin that can interact with his computer's camera."People like Garret are critically important, because they are the trailblazers," said Melanie Fontes Rainer, director of the Office for Civil Rights at the U.S. Department of Health and Human Services.
The federal administrator said she gets emotional when she sees how hard Frey and others fight for their rights. "You shouldn't have to advocate for health care," she said. "When I think about all that he's been through, and that he continues to use his voice, I think it is so powerful." The 1999 case focused on the Frey family's contention that the school district should pay for help Garret needed to safely use his ventilator so he could continue to attend classes. School district leaders said they shouldn't have to pay for such assistance because it was health care.
His mother, Jenny McLelland, said she shows printed copies of the Garret F. court decision to school officials when she requests that James be provided with a nurse so he can attend regular classes instead of being sent to a separate school.
Children Health And Human Services Health Care Hospital Lungs Medicaid Neck Nursing Speech Throat Ventilator Wheelchair
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