'I'm living with an extremely rare blood cancer - but I just want to go home'

Lancashire News

'I'm living with an extremely rare blood cancer - but I just want to go home'
BacupNHSIn The News
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Joanne visited her GP and was informed it was likely to be the effects of long-Covid - but over the course of the next year, she experienced more symptoms before finally getting answers

Amyloidosis is a group of rare conditions where a protein, called amyloid builds up in your body and can cause problems with your organs and crucially, the condition cannot be cured. With a range of symptoms from feeling tired to shortness of breath, often amyloidosis can be put down to other health problems, something one mum from Bacup knows all too well.

Aware something may be untoward, Joanne visited her GP and was informed it was likely to be the effects of long-Covid, after the mum-of-three had contracted the illness a few months prior. To try and relieve the pain she was in, Joanne was using painkillers and a TENS machine, but nothing was working.

There, she was told she should have been given omeprazole, a medication to protect the stomach lining but instead, Joanne was given anti-inflammatory drug, naproxen. Unfortunately, this eroded her stomach lining and she needed to be admitted to hospital. After this, she had a further six months where Joanne thought she had turned a corner, but things were about to get a lot worse. With further tests, it was found Joanne needed an urgent heart transplant and she needed to stay in the hospital before a heart became available.

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