Patient experiences of the post-acute sequelae of coronavirus disease 2019 (COVID-19) or long COVID.
By Pooja Toshniwal PahariaOct 2 2023Reviewed by Lily Ramsey, LLM In a recent study published in Scientific Reports, researchers used Patient-Reported Outcomes Survey survey data filled out by the My COVID Diary trial participants and their narrative submissions to describe patient experiences of the post-acute sequelae of coronavirus disease 2019 or long COVID.
About the study In the present observational cross-sectional study, researchers provided a holistic picture of post-acute COVID-19 sequelae experiences, encompassing social, mental, and physical symptoms, which can assist healthcare systems in delivering tailored long-term treatments to promote patient recovery.
The method was founded on two fundamental principles: long COVID knowledge must be multidimensional, including social, mental, and physical effect domains, and firmly based on patient voices.Related StoriesTwistle alerts participants at each time point to gather formal, validated surveys and encourages individuals to journal their experiences and symptoms.
The patient accounts supported and elucidated the categories further. At five to six months, a further LCA analysis corroborated patterns of responses across four groups, with no significant differences in physical and mental health outcomes. They reported weariness, mental health difficulties, brain fog, and cognitive problems. Family and friends' support helped overcome obstacles.
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