Holly Smallman's family were able to make lots of memories with her before she died thanks to the support of Claire House
A mum, who was told her daughter would never leave hospital, has shared her heartbreak after she died aged 18. Holly Smallman spent her life under the care of Claire House Children’s Hospice for her 'complex needs.' Doctors had warned her parents it was likely Holly would not live to see her first birthday, let alone be able to leave hospital.
Holly had a very rigorous routine, she needed multiple rounds of medicine every day, we had to prepare syringes of medicine, she required machines, chest physio, physio on her limbs, we had to be careful how we moved her because her bones were so brittle, so one wrong movement and her bones would break; she couldn't feed herself, we were always monitoring her blood levels, she had to have IV medicine; it was highly medically skilled to be able to look after her at home, but we wanted to...
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