Former Celtic captain Scott Brown has been inspired by ex-Rangers star Graeme Souness to raise awareness about a lack of nurses specializing in the treatment of Epidermolysis Bullosa (EB), also known as “butterfly skin”. Brown, after hearing Souness’s work with teenage EB sufferer Isla Grist, plans to follow in his footsteps and advocate for increased support for patients suffering from this debilitating condition.
Celtic legend Scott Brown has been inspired by former Rangers star Graeme Souness to tackle a lack of nurses for sufferers of an agonising skin condition. Brown was enraged to find out there is just one specialist nurse in Scotland dealing with sufferers of the “butterfly skin” condition EB.
“There are a lot of doctors who don’t even know what EB is. They are a little bit scared to diagnose it, to understand what it is, to understand what it means to a lot of families.” Brown also called for action to ensure those with the devastating condition be given prescriptions for life-changing medication Filsuvez. The Daily Record told exclusively in July how the drug had been approved for use in Scotland on the NHS. But to date not one single person is understood to have received a prescription for it.
Brown, now manager of Ayr United, told how he was inspired to get involved with the charity after Souness invited him to a recent Debra dinner in Glasgow. He said: “I watched Graeme on the stage and I obviously didn’t know too much about Debra and it was his emotion that pulled me towards this charity.
Both SNP MSP Bob Dorris, who hosted the event, and Public Health Minister Jenni Minto urged Debra to seek Scottish Government funding. Dorris said: “We have a new financial year coming up and we know the situation is challenging on the public purse.
Scott Brown Graeme Souness Epidermolysis Bullosa EB Charity Healthcare
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