Sounness inspired Scott Brown to tackle lack of nurses for agonising condition

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Sounness inspired Scott Brown to tackle lack of nurses for agonising condition
Graeme SounessScottish National PartyGlasgow
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Brown is planning to follow in the footsteps of his fellow Scotland midfielder to raise awareness of the “butterfly skin” condition EB.

Celtic legend Scott Brown has been inspired by former Rangers star Graeme Souness to tackle a lack of nurses for sufferers of an agonising skin condition. Brown was enraged to find out there is just one specialist nurse in Scotland dealing with sufferers of the “butterfly skin” condition EB.

“There are a lot of doctors who don’t even know what EB is. They are a little bit scared to diagnose it, to understand what it is, to understand what it means to a lot of families.” Brown also called for action to ensure those with the devastating condition be given prescriptions for life-changing medication Filsuvez. The Daily Record told exclusively in July how the drug had been approved for use in Scotland on the NHS. But to date not one single person is understood to have received a prescription for it.

Brown, now manager of Ayr United, told how he was inspired to get involved with the charity after Souness invited him to a recent Debra dinner in Glasgow. He said: “I watched Graeme on the stage and I obviously didn’t know too much about Debra and it was his emotion that pulled me towards this charity.

Both SNP MSP Bob Dorris, who hosted the event, and Public Health Minister Jenni Minto urged Debra to seek Scottish Government funding. Dorris said: “We have a new financial year coming up and we know the situation is challenging on the public purse.

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