Beandri Booysen, who suffered from an extremely rare incurable disease that caused her to age eight years for every one year of her life, has tragically passed away at just 19. Footage captures her singing and dancing in a heartfelt TikTok video.
Tragic Beandri Booysen who suffered from an extremely rare incurable disease that saw her age eight years for every one year of her short life has passed away - aged just 19.
She was born with the genetic mutation Hutchinson-Gilford progeria syndrome which causes fast ageing in children combined with osteoporosis which makes bones brittle and break. Beandri's mother Bea confirmed on her daughter's Facebook page that she had lost her battle for life yesterday and thanked all her fans worldwide for 'loving her deeply'.
Beandri was not expected to live past the age of 14 but refused to give up an became an internet sensation with over 269,000 followers. Her mother Bea confirmed on her daughter's Facebook page that she had lost her battle for life yesterday 'She became a symbol of awareness for Progeria and other special needs children using her unique spirit to inspire thousands of people worldwide. She never stopped fighting'.
'This made me stronger and the person I am today. I have a large TikTok presence to try and inspire and motivate those who follow me and keep them positive every single day.
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