Singer Celine Dion informed fans that she has been diagnosed with a rare neurological disease called stiff person syndrome. Here’s what to know about the condition and what it feels like:
Celine Dion performs during Barclaycard Presents British Summer Time on July 05, 2019 in London, Englandposted Dec. 8, singer Celine Dion informed fans that she has been diagnosed with a rare neurological disease called stiff person syndrome. A diagnosis wasn’t easy or straightforward. “I’ve been dealing with problems with my health for a long time…we now know this is what’s been causing all of the spasms that I’ve been having,” said Dion, who is 54.
One of the those patients is Maureen Materna, a 74-year old from Cleveland, Ohio who has been living with the condition since 2011. Like Dion’s diagnosis, it took doctors a while to reach hers. “I was always very active—I walked, biked and exercised, and was one of those people that does 20 millions things at one time,” Materna says. Then, she started getting intense cramps in her feet and legs that wouldn’t go away. The episodes would last about 45 minutes and leave her screaming in pain.
Others develop stiff person syndrome after different health issues, including bouts of viral infections or stressful experiences that may trigger the immune system in a dysfunctional way. “It needs to be studied more why some people develop stiff person syndrome and not others,” says Wilson.
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