She's been forced to give up work, and struggles with daily tasks
‘I take fifteen medications throughout the day including inhalers, antibiotics to treat the side-effects from my inhalers, antihistamines to keep my allergies at bay, nasal sprays to prevent wheezing.
‘I’ve lost three jobs because of my illness but the stigma I receive as a result can be difficult to bear.‘I want more than anything to work again but it’s difficult to find one that doesn’t require me to speak – as my shortness breath makes it hard – and one that doesn’t trigger my asthma.Victoria’s condition has had a huge impact on her life but she feels others judge her because she doesn’t look sick.
‘Some people don’t notice me when I’m out but there have been occasions where people have stared and called me offensive names.Vickie tries to enjoy days where she is well ‘I try to make myself small to not draw attention to myself – for example, I’ll pretend to look at my phone when I’m struggling to regulate my breathing.‘Because I don’t ‘look’ ill, countless people have confronted me when I’ve parked in a disabled bay.
‘My face is rounder and more bloated than it used to be and it can be embarrassing when I bump into someone I’ve not seen for a while.’ ‘I’ll sit down and describe a room in my head in as much detail as possible, which helps clear my head when things get tough. ‘Sometimes I feel like I’ll be like this forever, but I have to hold onto hope. In the beginning of January, a new biologic drug called Benralizumab was greenlit by NICE , a monthly injection that can help people with severe asthma.
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