'The worst data ever uncovered': ITV News reveals up to decade long wait for ADHD referrals

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'The worst data ever uncovered': ITV News reveals up to decade long wait for ADHD referrals
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The figures uncovered by ITV News are stark and reflect a clear postcode lottery, report Sarika Gandhi and Stacey Foster.

ITV News can reveal the alarmingly long waits for ADHD referrals on the NHS, with some as long as a decade for adults as Stacey Foster reportsITV News and ADHD UK have conducted the most comprehensive review of NHS wait times for anPaola, Imogen, and Cherelle may be from different parts of the UK and different ages, but they have more in common than a suspected ADHD diagnosis - they're stuck waiting for years to find out whether they have the condition.

Cherelle isn’t even on a waiting list for an assessment after waiting 50 weeks for an appointment with a clinician to decide whether she can go on the waiting list.Credit: ITV NewsMany Healthcare Boards didn’t reply to our Freedom of Information Request. Only 21% of healthcare boards knew their data with the vast majority unable to indicate how long their wait list is or how many people are waiting on it.

There’s also a wider understanding of ADHD which is causing more people to reach out to their GP for a referral, inundating a system that is already at capacity for many NHS Trusts around the country. Until then, she will go through the education system unable to get any extra support and help until she gets an official diagnosis.

"So who knows, maybe another three years, maybe we look at it in nine years. By the time she's got a diagnosis, I really don't know. Sitting in her home chatting with her son Ziggy about what a diagnosis would mean for the family, it was clear how Paola was living her life waiting for an answer - not knowing when she will get it."I go into these big meeting or as change things at work, I say this is something I need to talk about, but I can't because there is nothing to talk about yet."

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